Congenital Heart Defects
Congenital heart defects raise numerous questions for those affected and their relatives that affect all areas of life. We have summarised the most important questions and answers for you.
Helpful Websites
You can find a variety of publications on the following websites:
The diagnosis of a heart defect impacts the development of affected families. Therefore, parents founded the Parents’ Association in 1989. We support affected parents, organize events, and promote exchange
The Fontanherzen Schweiz association supports and accompanies families whose children live with half a heart, provides information and facilitates dialogue between affected families and specialists.
The Association for Adolescents and Adults with Congenital Heart Defects is interested in more than just your heart defect.
We promote dialogue between families with children with heart disease in French-speaking Switzerland through meetings and self-help groups. We organise sports and leisure activities and support projects to improve their everyday lives.
Each year, 700–800 children are born with a congenital heart defect, over 90% of whom reach adulthood. Nursing plays an increasingly important role. Therefore, the "Interest Group Nursing for Congenital Heart Defects" was founded on January 13, 2016.
WATCH, the Swiss working group of cardiologists for teenagers and adults with congenital heart defects, advocates for appropriate cardiac care for this growing patient group. Thanks to specialized procedures in pediatric cardiology centers, most affected children reach adulthood.
Canadian Congenital Heart Association: A Canadian organization for congenital heart defects.
Global ARCH: Strengthens patient and family organizations worldwide, supporting children with congenital and rheumatic heart diseases through education, mentoring, and advocacy to improve their quality of life and outcomes.